Keweenaw Home Nursing & Hospice



 

 
Multiple Sclerosis Support Group
What is Multiple Sclerosis?
Multiple Sclerosis (or MS) is a chronic, sometimes disabling disease that attacks the central nervous system. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. The severity or specific symptoms of MS in any one person cannot be predicted.

What are the Symptoms of MS?
The symptoms may include tingling, numbness, painful sensations, slurred speech, and blurred or double vision. Some people experience muscle weakness, poor balance, poor coordination, muscle tightness or spasticity, tremors, or paralysis. Problems with bladder, bowel, or sexual function are common. Fatigue is also a major concern for many.

Is MS Hereditary? 
Studies indicate that genetic factors make certain individuals susceptible to the disease, but there is no evidence that MS is directly inherited.

Why are People Affected by MS in Different Ways?
MS has many faces. There are four main forms of the disease:

1. Benign MS - The least severe form of MS. Minor, but plaguing symptoms, not resulting in disability.

2. Relapsing/Remitting MS (R/R MS) - This form of MS is marked by "attacks" or "relapses". These can be followed by quiet periods called "remissions".  Most people with MS have this form of the disease.

3. Secondary-Progressive MS - Eventually, R/R MS progresses into the next stage of the disease, which is marked with a steady worsening of symptoms, sometimes resulting in disability.

4. Primary-Progressive MS - There are no "attacks" per se. From the onset of MS, the disease worsens steadily. This is the severest form of the disease.

Can MS be Treated? 
Yes. There are 5 federally approved medications that treat MS. They are all taken by injection. Avonex, Betaseron, Rebif, and Copaxone have been shown to be effective in modifying the natural course of R/R MS. The fifth drug, Novantrone, is effective in slowing down MS that is rapidly worsening or becoming progressive.

Who Gets MS?
An estimated 400,000 Americans have MS. Most are diagnosed between the ages of 20 and 50, and about two thirds are women. The disease is more frequently found among people who grew up in colder climates.

What is the General Pattern of MS? 
Because MS affects individuals so differently, it is difficult to make generalizations about disability. Statistics suggest that 2 out of 3 people with MS remain able to walk over their lifetime, but many will need a cane or other assistive device. Some will choose to use a scooter or wheelchair to conserve energy. Others will require a wheelchair to maintain mobility.

Can MS be cured?
No - not yet. The cause and cure of MS are the subject of intensive worldwide research. Knowledge about MS is growing quickly and many clinical trials are in progress. 

Copper Country MS Support group (CCMSS)
We are here to help. There is a wonderful support group with many people attending who either have MS or are caring for someone with MS. Please join us. Meetings are open and free. They are a great way to meet other people with MS, get information through speakers and literature, and socialize in a relaxed environment.

Meetings are every month on the second Wednesday at 6:30 at Keweenaw Home Nursing (KHN) on 6th Street in Calumet. The building is handicapped accessible.

Please join us! If you have any questions or are in need of transportation, please call Rachel Laurn, 906-281-3673 (rlaurn@hotmail.com), or Gail Smith, 296-0933 (gsmith@up.net).